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Comprehensive Information and Support

The ICA's website, www.ichelp.org, which receives over 1,000,000 hits per month, provides immediate access to the most current, comprehensive IC-related information, including:

  • Café ICA, our on-line monthly news digest
  • Extensive Treatment, Research and Clinical Trials sections, and information on Experimental Therapies
  • ICA Question Corner, a place for patients to ask questions about concerns they may have regarding their IC and receive a quick and thorough personal response. IC patients throughout the world contact the ICA for help through IC Question Corner every day.
  • Local and national patient support, including self-help and coping strategies, as well as support group information and listings
  • Our Newsletter: In production since 1985, The ICA Update, a quarterly publication, provides the most comprehensive, up-to-date information about IC, treatments, coping strategies, research and human interest stories. The ICA Update remains the only IC-oriented publication of its kind.
  • ICA National Meetings, Regional Forums & Scientific Symposia:  The ICA sponsors National Meetings and Regional Forums for patients, caregivers, researchers and clinicians to meet and exchange information. Also, the ICA and the NIDDK co-sponsor International Scientific Symposia for researchers and clinicians, where the most current IC research findings are presented. The ICA represents IC at related medical conferences worldwide.
  • Our Toll-free number: 1-800-HELP ICA has been providing hotline help to the IC community since 1996.
  • ICA National Patient Support Advocates: Nationwide volunteers provide telephone support to sufferers of IC and assist them in local medical help. They also disseminate IC information to their community health clinics and libraries.
  • The ICA Physician Registry: The ICA distributes, upon request, state-by-state lists of urologists who have indicated to us their interest in treating patients with IC.

FOR PATIENT-ORIENTED INFORMATION ABOUT IC AND TREATMENTS, PLEASE USE THE MENUS ON THE LEFT TO BROWSE OUR WEBSITE.

Interstitial Cystitis Association phone: 1-800-HELP ICA email: icamail@ichelp.org 2007 ICA. All Rights Reserved. Admin