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| Well managed, under control (12) |  16% |  | | Somewhat managed (25) | 32% | | | Not well managed (18) | 23% | | | Not in control (22) | 29% | |
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| IC research (30) | 50% | | | Health care reform that addresses the needs of the patients (9) | 15% | | | Improving the SSA's disability process (6) | 10% | | | Improving access to specialists who treat IC (10) | 17% | | | Improving coverage of nutrition and physical therapy (5) | 8% | |
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| Finding an affordable health insurance plan (5) | 8% | | | Finding healthcare providers who understand how to treat IC (34) | 53% | | | Paying for prescription medicines (13) | 20% | | | Lack of coverage for ancillary services such as physical therapy (9) | 14% | | | Other (3) | 5% | |
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| help to empty my bladder (urinary retention) (2) | 7% | | | put medication into my bladder, such as heparin (14) | 50% | | | empty my bladder to be more comfortable while traveling (4) | 14% | | | other (8) | 29% | |
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| Information on treatment options (17) | 25% | | | The latest research news (8) | 12% | | | Patient stories (9) | 13% | | | Self-help ideas and coping strategies (22) | 32% | | | Educating the medical community about IC (12) | 18% | |
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| further your education (4) | 5% | | | obtain medical insurance for yourself (0) | 0% | | | obtain and retain gainful employment (19) | 23% | | | some of the above (21) | 25% | | | all of the above (20) | 24% | | | none of the above (19) | 23% | |
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| Yes (74) | 59% | | | No (47) | 37% | | | Not sure (5) | 4% | |
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| Funding IC research (10) | 21% | | | Advocating for government funding for IC research (5) | 10% | | | Providing education and support to patients and loved ones (15) | 31% | | | Educating the medical community about IC (11) | 23% | | | Informing the general public about IC (7) | 15% | |
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| IC (65) | 49% | | | The other condition(s) (69) | 51% | |
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| Very knowledgeable about IC (56) | 36% | | | Somewhat knowledgeable about IC (26) | 17% | | | In need of learning a lot more about IC (53) | 34% | | | I do not regularly visit healthcare providers to treat my IC (19) | 12% | |
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| Excellent (3) | 1% | | | Good (1) | 0% | | | Fair (7) | 2% | | | Poor (41) | 14% | | | I have never seen any media coverage of IC (234) | 82% | |
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| Helps (29) | 19% | | | Flares (43) | 28% | | | Does not affect it (33) | 21% | | | Depends on the type of exercise (51) | 33% | |
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| Yes (179) | 71% | | | No (29) | 12% | | | Sometimes (44) | 17% | |
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| Healthcare professional (86) | 36% | | | Internet search (117) | 49% | | | Support group (4) | 2% | | | Media, such as a magazine, newspaper, public service announcement, etc. (12) | 5% | | | Friend or family member (18) | 8% | |
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| Diet modification (75) | 41% | | | Oral medications (64) | 35% | | | Bladder instillations (29) | 16% | | | Surgical procedures (7) | 4% | | | Dietary Supplements (4) | 2% | | | Other (4) | 2% | |
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| Yes (75) | 47% | | | No (55) | 35% | | | I do not have any related conditions (29) | 18% | |
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| 1 to 3 (155) | 52% | | | 4 to 6 (94) | 32% | | | 7 to 9 (24) | 8% | | | 10 or more (24) | 8% | |
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| Yes (136) | 51% | | | No (131) | 49% | |
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| Mild (39) | 9% | | | Moderate (67) | 16% | | | Severe (109) | 26% | | | A mix of the above, with intermittent flare-ups (212) | 50% | |
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| Yes (167) | 92% | | | No (3) | 2% | | | Not sure (11) | 6% | |
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| Cystoscopy with hydrodistention under general anesthesia (162) | 48% | | | In-office cystoscopy (33) | 10% | | | Potassium chloride sensitivity test (KCl test) (44) | 13% | | | Diagnosis based on symptoms only (50) | 15% | | | I have not been formally diagnosed with IC (49) | 14% | |
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| Pain only (48) | 10% | | | Urinary frequency and urgency only (59) | 12% | | | Pain, frequency, and urgency (193) | 39% | | | Pain, frequency, and urgency accompanying other chronic conditions such as irritable bowel syndrome, fibromyalgia, etc. (187) | 38% | | | None of the above (3) | 1% | |
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| Healthcare professional (202) | 58% | | | Online research of your symptoms (78) | 23% | | | Friend or family (38) | 11% | | | Media (28) | 8% | |
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| Natural supplements (23) | 15% | | | Vitamins and minerals (15) | 10% | | | Massage therapy, acupuncture, or other body work (18) | 12% | | | Other alternative or complementary healthcare practices (13) | 9% | | | No, I do not use any of the above (82) | 54% | |
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| Chronic urinary tract infections (74) | 26% | | | Trauma or injury to the pelvic region (22) | 8% | | | Pelvic/abdominal/gynecological surgery (26) | 9% | | | Giving birth (15) | 5% | | | Environmental or toxic exposure (10) | 4% | | | Systemic condition already in place, such as an autoimmune, neurological, etc. (41) | 14% | | | Inherited or genetic (16) | 6% | | | Other (8) | 3% | | | Not sure (71) | 25% | |
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| During childhood (28) | 6% | | | During adolescence (38) | 8% | | | In your 20s (142) | 29% | | | In your 30s (91) | 19% | | | In your 40s (84) | 17% | | | In your 50s (65) | 13% | | | In your 60s (33) | 7% | | | In your 70s (7) | 1% | | | At age 80 or above (1) | 0% | |
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| Finding better treatments for IC (52) | 26% | | | Finding out the cause or causes of IC (17) | 8% | | | Finding a cure for IC (93) | 46% | | | Educating the medical community about IC (11) | 6% | | | Connecting the dots between IC and related conditions (15) | 8% | | | Meeting others who also have IC (12) | 6% | |
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| An oral medication (198) | 78% | | | A bladder instillation (13) | 5% | | | A internal neuromodulation device that uses electric stimulation (7) | 3% | | | An external (non-surgical) neuromodulation device that uses electric stimulation (14) | 5% | | | A surgical procedure (19) | 7% | | | Other (4) | 2% | |
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| Coffee, tea, caffeinated beverages (76) | 34% | | | Juices such as orange juice or cranberry juice (54) | 24% | | | Anything containing vinegar or lemon (17) | 8% | | | Tomatoes (23) | 10% | | | Carbonated beverages (25) | 11% | | | Preservatives, additives, or chemicals such as MSG (27) | 12% | |
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| urologist (242) | 58% | | | gynecologist (83) | 20% | | | urogynecologist (38) | 9% | | | general practitioner (9) | 2% | | | other medical professional (6) | 1% | | | not officially diagnosed (42) | 10% | |
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| Depressed (19) | 6% | | | Anxious (9) | 3% | | | Isolated (5) | 2% | | | Fearful about going out or being in social situations (6) | 2% | | | Angry (18) | 6% | | | Some of the above (101) | 34% | | | All of the above (130) | 43% | | | None of the above (13) | 4% | |
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| Local support group meetings (10) | 11% | | | Family and friends (51) | 57% | | | Involvement in a nonprofit organization, such as the ICA (9) | 10% | | | Pets (19) | 21% | |
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